This study is being conducted by researchers at Memorial University in St. John’s, NL. It aims to explore the opinions of individuals from families with identified BRCA 1/2 and Lynch mutations about methods of informing relatives about their risk of inherited cancer. The researchers would like to hear about the experience of telling other family members about their family genetic cancer risk. They also hope to hear from people who were told about their risk by a relative but may not themselves have informed others in the family. The survey takes about 15-20 minutes to fill out.
They hope that this information will allow them to identify all possible ways at-risk individuals could be identified so they might benefit from genetic counselling and life-saving interventions.
For more information or to participate please click here.
The National Institutes of Health (NIH) is seeking male participants (30-75) with a genetic risk factor for developing prostate cancer. The study includes regular MRI screening and biopsies for those showing irregular tests. For more information, please contact Anna Couvillon at the National Institutes of Health.
Graphic Novel Study
Are you a male at high risk for developing hereditary cancer but has not been diagnosed with cancer? Do you have a family history of carrying a BRCA1/2 genetic mutation? Do you feel you have information to make informed health and family decisions about your future? Are you interested in sharing your experiences to help others?
Participate in a 60-minute online interview. Participants will receive a $30 Amazon gift card. If you are interested in this research opportunity, please the study coordinator Ms. Lexi Ingle at firstname.lastname@example.org.